Guess What????
Kellar was caught reaching up for his toys while in his bouncy, I say caught because if you look at him, he stops..Little toot…Right now he is talking up a storm, to his foot…I am so blessed, I have one of the happiest babies I have ever been around..He is happy even when I know he feels bad, which I am thinking he may not be feeling all that great right now, Joey noticed that yesterday Kellar just wasn’t as playful as he normally is and he’s not eating as well…He also has been coughing, I am not sure if he’s getting a cold or if he is experiencing reflux since he is now off of the prilosec…I did however call his pedi on Friday and was told to give him infant pediasure, he isn’t running a fever or anything just not quite himself right now…I also noticed this morning while playing with Kellar that he is starting to roll ALL OVER the place, he’s been rolling for awhile now but now he ends up clear across the room, little stinker…
ECI Update…
Lori came and visited Kellar and overall she thinks he is doing well…Last time she came he was not “pushing up” on his arms when doing tummy time, well guess what, now he is…I am so proud of him…He looks like a turtle on it’s back, he’ll get his head straight up in the air, then he’ll pull his legs upward and it’s like he gets high centered, way to funny and cute…She pointed out that Kellar tends to kind of keep his head resting at a angle at times, I too have noticed this, but I have thought that it was just because the back of his head is not “normal” shaped right now, yes I am quite shocked that this is one thing I did notice and did not freak out over, of course I had my own excuse as to why he was doing this..After pointing out the peak that Kellar has on the back of his head, she was in agreeance with me that this was probably contributing to this tilt and that once he gets his band hopefully it will help…She had me pull Kellar to sit several times just to see if he turned his head when being pulled up, some times he did, others he didn’t…Lori also sat Kellar up and was quite impressed with how well he did, he sat with very little support at all..After she left I was in the floor playing with Kellar and I sat him up, and he sat by himself, of course he was forward leaning on his hands but he did sit, alone…She would like to see him really reaching up towards things, he does reach for things but they generally have to be within his reach, when she tried to straighten his arms out he wanted no part of that and tucked them in…So she laid him down and instantly his legs flew up and he grabbed his feet and started playing with his socks, so she said she knows he’s not stiff or he wouldn’t be able to grab his feet, he was resisting her…I have noticed that the head tremor seems to be getting a little less noticeable, still praying that it’s nothing though…Kellar has grown so much, he loves to eat, and I mean loves to eat…The one thing that we have found that he doesn’t like is green beans and guava fruit..I don’t blame him on the guave, I tasted of it and started to chunk it before even attempting to get him to eat it..He spit it right back out…Peas and bananas seem to be his favorite, Joey and I wonder if he favors bananas because that is what the NICU used to flavor his milk with…Since Christmas I have been trying to go through Kellars’ stuff to make room for his new toys and clothes, I decided to take a count of his shoes, 32 pairs…I guess since I have a shoe addiction I felt the need to pass it on to my son…We do go to Dallas next Friday to meet with the pedi neurologist, then we have to meet with a specialist for Kellars head shape ( ins requirement )…Hard to believe the years almost over and that in a few months my baby will be 1…
Merry Christmas!
Well we have finally settled down after an eventful couple of days. Kellar is worn out, and there are new toys and things strewn everywhere. Kellar’s very first Christmas was wonderful, even though he’s not big enough to actually open the gifts by himself…we all had fun helping him and i think he enjoyed playing with the paper as much as anything. I can’t wait until next year, Kellar will be able to enjoy it more then.
I have added pictures from the last month (i’ve been slacking, i know), including the Christmas pics and the wonderful pictures taken by Jessica Roach last month. Thank you again Jessica, you did a great job!
But his head doesn’t look that bad…does it??
Kellar went to visit the “helmet” dr on Monday, was I told anything I didn’t already know, yes as a matter of fact I was…I knew that Kellars’ head on the right side was a little flat, but when she gave me the measurements of what his was compared to what a normal head is, geeze it was quite a bit of difference…Looking at Kellar head on, you can’t tell, and if it had not been for one night before his bath I had him in the mirror so he could see how cute he really is for himself, I probably would have never noticed the severity of the shape of his head, but after hearing the lovely lady that took Kellars measurements it must have just been that “mothers love” blindness that caused me not to see this…So for now we are in the process of getting the prescription for the band, yes band sounds much better than helmet, and getting approval from insurance, which again the lady stressed that with the severity of his head should be no problem getting approved…I left there thinking I may need to go and get my eyes rechecked because I never noticed it being as bad as what she made it out to be…After approval from insurance, we go back and they take a mold of Kellars head, then it should take 2 wks for his band to come in, we go down for a fitting and then once a week we go back for readjusting..It’s very lightweight, I believe she said it weighs like 4 ounces, I was worried that this may put him behind in things developmentally but to her knowledge she’s never heard of it…So for 23 hrs a day Kellar will have this contraption strapped to his head, but at least we can decorate it, Joey is thinking we need to paint it black w/flames down the side and have Kellars’ name on the front, who knows, if they weren’t so darn expensive I would say we get several in different colors so it would match his clothes, but at at least $3000 a band, that won’t happen..Also we have an appt with the pediatric neurologist in Dallas January 5 to get another opinion on this tremor that Kellar has… Yes I am worried about this, I would be lying if I said I weren’t, there is just something very uncomforting about seeing your childs’ head shake when he wants something, which is really the only time we notice this..If you have Kellars bottle, and he sees it and wants it, his head will start to shake, most are of the opinion that it’s just a whole “anxious” thing, or that he needs to gain better muscle control, and I too hope that it is nothing more than that…I know this dr will only have a medical opinion, there is only one person who truly knows what is going on with Kellar and that is God, and I pray to him daily that this is just a passing thing and that Kellar will eventually be able to do things without this tremble…We would like to wish all of our readers a Merry Christmas and a Wonderful New Year…
We’re monitor free baby…..
Kellar is off the monitor, I don’t know why I sound so excited because I know I probably won’t sleep a wink tonight, or the next or the next and well you get the picture, but it’s a good thing for Kellar, but maybe not for mommys’ nerves…As most know we went to Dallas today to see what this “shaking” Kellar does is all about…Well Dr. Sudawala thinks this has to do with the lack of strength right now, upon examining Kellar he noticed some stiffness on his left side but thinks this to will work itself out, so as of right now he thinks what complications Kellar may have if any at all will be manageable…I asked about cp and he said that Kellar is not showing signs of having this, he said we are going to be cautious but he’s not worried…All in all he was pleased with how well Kellar looks and how well he’s doing, he too felt Kellar was doing things that you would expect to see a 5 month old doing….I go back to Dallas next Monday for a consultation on the shape of Kellars head, it looks as though he will have to wear a “band” which basically is a helmet…Does this break my heart to think about my precious lil man having to wear this 23 hours a day, yes, but it has to be done so we shall deal with this as well…I know he’ll be just as adorable with a helmet and I dare anyone to say different…So I am fairly pleased with todays appt, but prayers are always welcomed…